Department of Internal Medicine, Tehran University of Medical Sciences, Tehran, Iran
Research Article
Minimum Dataset Development for Hematopoietic Stem Cell Transplantation (HSCT) Recipient Registry in Iran
Author(s): Moloud Taheriyan1*, Mohammadre za Dabiri2, Seyed Reza SafaeiNodehi2, Sharareh R Niakan Kalhori1, Niloofar Mohammadzadeh1
Purpose: The lack of a uniform Minimum Data Set (MDS) in Iran for recording and reporting the Hematopoietic Stem Cell Transplantation (HSCT) recipients across all treatment processes leads to determining a localized MDS by considering two well-known international MDS. This study describes the required MDS development for the hematopoietic stem cell transplantation recipient registry.
Method: The study was conducted in 2020-2021. An expert panel of three hematology and oncology specialists and three medical informatics were formed. After reviewing data sets of HSCT registries, focus groups, meetings, questionnaire development and validation, an MDS was determined.
Results: The validated MDS comprises 1177 data elements in 9 sections, including pre-HSCT, leukemia, lymphoma, myelodysplastic syndrome, myeloproliferativ.. View More»
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